What was the longest evening you ever had as a mother or father?

It has been someday since I did an edit principally as a result of 2020 was a really powerful yr. Dominic began to have seizures in late 2019, however it took till Could 2020 to be formally identified. He began a drugs which made him extremely aggressive and in the end didn’t work. We then tried a second medicine which additionally didn’t work. By November 2020 he was having a number of seizures an hour and fixed epileptic output in his proper occipital lobe. We have been informed that long run children like Dominic are likely to get progressively worse until mind surgical procedure is preformed. The docs despatched his case for a surgical seek the advice of and was decided that he was a very good candidate for lobectomy. We have been informed in January that his case can be scheduled for someday within the spring however with Covid instances rising in our space there was no assure for time. Dominic began to have longer seizures they usually began to have an effect on his stamina. They pushed him to the entrance of the listing as a result of there was an actual fear of him creating ESES. Dominic had main mind surgical procedure on April 20, 2021, which not going to lie was terrible and scary. We have been launched to return dwelling on April 24, 2021 and since then he’s achieved remarkably effectively. I haven’t seen any extra seizures however it received’t be confirmed for a number of extra months till his mind heals extra. He’s actually scuffling with some behavioural points, however that’s a combo of medicines and surgical procedure restoration nonetheless. It’s been a troublesome yr for little man, however he nonetheless provides me massive hugs and now reply after I say love you by saying again me too.

That is him day 2 after surgical procedure

$adverts={1}